Page 3 - NTM Insight Pamphlet 2024

TABLE OF CONTENTS
INSIGHT.................................................................................................................. 2 WHAT ARE NONTUBERCULOUS MYCOBACTERIA............................................... 2 WHO GETS NTM?................................................................................................... 3 HOW DID I GET IT?................................................................................................ 4 AM I CONTAGIOUS?.............................................................................................. 4 WHY HAVEN’T I HEARD OF NTM LUNG DISEASE BEFORE? ............................... 4 HOW IS NTM DIAGNOSED?...................................................................................5 CYSTIC FYBROSIS...................................................................................................6 BRONCHIECTASIS.................................................................................................. 6 COMMON SYMPTOMS OF NTM............................................................................7 YOUR TREATMENT: THE EMPHASIS IS ON YOU! .................................................8 CAREGIVERS & FAMILIES.....................................................................................10 TREATMENTS & SIDE EFFECTS.............................................................................12 MANAGING SIDE EFFECTS...................................................................................16 PULMONARY FUNCTION TESTS (PFTs).............................................................. 18 SURGERY FOR PULMONARY NTM DISEASE.......................................................18 SURGERY FOR EXTRAPULMONARY OR DISSEMINATED MAC OR NTM........... 19 PREVENTION & REDUCING EXPOSURE ............................................................. 19 ALLERGIES............................................................................................................ 21 NTM & OTHER INFECTIONS................................................................................ 21 FOLLOW-UP: KEEP CONTROL OF YOUR ILLNESS.............................................. 21 QUESTIONS TO ASK YOUR DOCTOR...................................................................22 THE ROLE OF REFERRALS....................................................................................24 LIVING WITH NTM...............................................................................................24 RESEARCH & CLINICAL TRIALS........................................................................... 26 PATIENT SUPPORT GROUPS............................................................................... 27 GLOSSARY OF TERMS.......................................................................................... 28 ABOUT NTM INFO & RESEARCH........................................................................ 32