Page 33 - CF Roundtable - Winter/Spring 2026
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Here is my list of privilege wishes:
I wish I could leave the house with a small “clutch”
pocketbook.
I wish I could go to a “no cell phone” event but I need
mine to manage my insulin.
I wish I could travel without worrying about my meds
being confiscated.
I wish I could travel with just a carry-on bag.
I wish I could travel without researching the best
hospital in the area.
I wish I could go to an interview or a meeting without
threat of my medical equipment beeping.
I wish I could go to an interview without risk of
needing to disclose my disabilities.
I wish I could choose employment without needing to
analyze the health benefits options in great detail.
I wish I didn’t need to use all my paid sick days to
attend medical appointments.
I wish other people going to work sick didn’t put my
life at risk.
I wish I could choose the lower cost health plan.
I wish I could get life insurance to protect my family.
I wish I could get 90-day supplies of all my meds.
I wish I could go to the pharmacy once a month at the
most.
I wish I could coordinate my medical appointments
easily.
I wish my medical appointments could be less than
an hour away from my home.
I wish health care wasn’t connected to employment.
I wish insurance wasn’t so difficult.
I wish insurance didn’t require prior authorizations.
I wish insurance didn’t require me to use five different
specialty pharmacies.
I wish I didn’t have to deal with insurance issues
on a weekly basis.
I wish my medications came already organized
for A.M. and P.M.
I wish I knew that I would always have access to
needed medications.
I wish they gave you enough medications to actually
make it to the next refill.
I wish everything could be on automatic refill.
I wish that all needed medications showed up at
my door.
I wish that all medications did not require a signature
upon delivery.
I wish I didn’t have to call the manufacturer every time
a pod falls off.
I wish I didn’t have to “save” the pod to read them a
bunch of numbers to get a replacement.
I wish I would have a chance during a “doomsday
scenario.”
I wish I could count on society protecting me during a
pandemic.
I wish I could count on having access to life-saving
ventilation during a pandemic.
I wish I could count on society not deprioritizing my
care during a pandemic.
I wish I could request curbside pickup during a
pandemic and be easily accommodated.
I wish I could request a workplace accommodation
based on my disabilities and have confidence that
I would be treated fairly.
I wish the Americans with Disabilities Act had
more teeth.
I wish my disability identities were seen by society as
assets.
I wish I could watch tv and see disability represented.
I wish the representation I did see was authentic and
empowering.
I wish I could buy magazines, books, and toys that
feature people who share my and my children’s
disability identities.
I wish I did not have to risk being seen as a bitch while
advocating for my needs.
I wish I did not have to risk being seen as a bitch while
advocating for my children’s needs.
I wish I could hang out in person with people that
share my identity without putting my health (or their
health) at risk.
I wish I could plan on retirement.
I wish I could plan for a comfortable and healthy
retirement.
I wish I could plan on living to “retirement.”
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