Page 42 - Experience Based Co-design - a toolkit for Australia

“You never really understand a person until you consider things from his point of view... until you climb inside of his skin and walk around in it.”
—Atticus Finch, in Harper Lee‟s To Kill a Mockingbird
Patient Stories
Patient and Family Shadowing – A resource from PFCC
Design students from University of Canberra attended a GP clinic to undertake observation in the waiting room. After a careful analysis of activities students identified potential problems to tackle. The observation process informed a separate project that and was used as trigger material at a consumer workshop developed an interactive pod in the waiting room. (Case Study 6)
Storytelling is at the heart of EBCD. Gathering the richness of experiences from stories is a critical element of the methodology.
In the design of communication boards in a paediatric was the project teams identified “listening to patients and families to incorporate their ideas and suggestions” was a success factor. At the same time when asked what they would do differently they said, “we would do more interviews, and if possible, record these for use in staff focus groups” (Case Study 2)
Stories can be gathered by interviewing patients as a group or individually or with their families and carers. Patient will often share information in an interview they might not otherwise share. They are best gathered at this stage and then can be used at a number subsequent stages of the project.