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ORGANIZATIONS &

FAMILY SUPPORT

RESOURCES

PEDIATRIC STROKE SUPPORT GROUPS

Hospital based Pediatric Stroke Support groups are an area of need that are growing. Pediatric stroke support groups
provide a re-occurring meeting place for parents to discuss topics, share stories and help ease the isolation that is
common after a child’s stroke. Check with your child’s medical team and ask if the hospital has this type of program
for your family to take part in.

Many parents have expressed the desire for an ongoing family support group, but that there is simply no time to fit
one into their schedule. This is especially true as you begin balancing medical appointments, care, career, family and
all of the many details of everyday life. If time restrictions make it hard to prioritize support, there are a number of
online and social media support pages that exist.

Virtual family to family support groups allow you to connect and ask questions on your schedule - without leaving the
comfort of home. Having those connections with other families who have “been there” is a proven source of ongoing
support that we encourage you to consider joining. We have included a number of these virtual support groups in this
toolkit, find one that works best for you.

ONLINE PEDIATRIC STROKE NETWORK

American Heart and American Stroke Association Support Network for Pediatric Stroke: This Support Network offers
a dedicated Pediatric Stroke discussion board where you can connect with other families and caregivers, share your
stroke experiences, and give and get emotional support and encouragement.

Set up a profile at Supportnetwork.heart.org

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