Page 39 - CF Roundtable - Winter/Spring 2026

IMPORTANT REMINDERS
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Please notify USACFA immediately of any address changes. Returned mail wastes money and
delays mailings. Visit cfroundtable.com/subscription-preferences to update your info, or email
your subscription changes to subscriptions@usacfa.org. We appreciate your support.
USACFA would like to act as a referral source for active adult support groups. To be added to our
Resources page on our website, please send an email with the support group’s name and contact
information to cfroundtable@usacfa.org
Please let us know of the major occurrances in your life, such as: marriages, births, completion of
educational degrees or training, career advancement, transplants, anniversaries, and/or birthdays.
We will include your information in the Milestones section of a future issue.
Share your ideas for focus topics, featured articles, or any suggestions for improvements you may
have to help make CF Roundtable more relevant and interesting to you.
You can reach USACFA and CF Roundtable with any questions at any time by email at
cfroundtable@usacfa.org
Send your questions regarding legal issues that relate to CF to Beth Sufian, J.D. at
1-800-622-0385 or CFLegal@sufianpassamano.com
You may subscribe to both print and digital magazines at cfroundtable.com/magazine
RESOURCES
Medicine Assistance Tool (MAT):
medicineassistancetool.org
PhRMA’s Medicine Assistance Tool (MAT) is a search engine designed to help patients, caregivers, and healthcare
providers learn more about the resources available through the various biopharmaceutical industry programs. MAT is
not its own patient assistance program, but rather a search engine for many of the patient assistance resources that the
biopharmaceutical industry offers.
United Network for Organ Sharing (UNOS):
Phone: 1-888-894-6361 | www.unos.org
UNOS is the national Organ Procurement and Transplantation Network (OPTN) contractor. As the OPTN contractor, UNOS
manages the national transplant waitlist by matching donors to recipients 24/7, 365 days a year, securely maintains a
database containing all organ transplant data for every U.S. transplant performed, unites the transplant community to
develop equitable allocation policies, and monitors organ matches to ensure policies are followed.
Transplant Recipients International Organization, Inc. (TRIO):
Phone: 1-800-TRIO-386 | www.trioweb.org
An independent, nonprofit, international organization committed to improving the quality of life of transplant recipients
and their families and the families of organ and tissue donors. For information, write to: TRIO, 7055 Heritage Hunt Dr,
#307, Gainesville, VA 20155 or email: info@trioweb.org
Disability Rights Education and Defense Fund (DREDF):
Phone: 1-510-644-2555 | Email: info@dredf.org
Contact DREDF to learn how the Americans with Disabilities Act (ADA) applies to you.
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