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208 7.3  Nutrition for Children with Chronic Diseases and Syndromes

Table 7.3.1  Medical conditions and the main dietary modifications

Medical condition                         Dietary modifications
Autistic spectrum disorders including
attention deficit hyperactivity disorder  Extra nutrient supplementation to address any nutritional deficiencies
(ADHD) and Asperger’s syndrome            in children with very selective eating
Burns                                     Parents can be supported when they wish to trial various dietary
                                          modifications to ascertain if this will improve symptoms in their child
Cancer
                                          Increased energy, protein nutrient or fluid requirements depending
Carbohydrate intolerances                 on the extent of the injury, mobility and albumin levels
Coeliac disease                           Early enteral feeding in children with major burns
                                          Increased intake of prebiotics and probiotics in those with diarrhoea
Congential heart disease
Cystic fibrosis (CF)                      Varies according to symptoms. Frequently nutritional support to
                                          address poor growth or a poor appetite as a result of cahexia or drug
Diabetes – type 1                         treatments
Epilepsy
Fat malabsorption                         Avoidance or limited intake of the sugar causing the intolerance. The
HIV and AIDS                              sugar may be lactose, sucrose, glucose, fructose or galactose

Inherited metabolic disorders             A gluten-free diet avoiding the protein gluten found in wheat, rye
                                          and barley. Some children may also need to avoid the protein avenin
Inflammatory bowel diseases: Crohn’s      in oats
disease
                                          Increased energy requirements and/or energy to be provided in
Kidney disease                            smaller volumes of food or fluid

Liver disease                             Increased energy, protein and nutrient requirements to address
                                          malabsorption. Nutritional support is frequently needed to promote
                                          growth and an adequate BMI
                                          About 90 per cent of children with cystic fibrosis take oral pancreatic
                                          enzyme treatments to improve their digestion and absorption of
                                          protein, fat and some vitamins

                                          Controlled carbohydrate intakes to coordinate with insulin treatment

                                          When patients do not respond to medication, a ketogenic diet, which
                                          is very high in fat and low in carbohydrate, may be tried

                                          Reduced fat intake or a modified fat intake

                                          Healthy eating to optimize immune system as even with undetectable
                                          viral loads, these children are more vulnerable to infection
                                          Nutritional support when appetite is reduced or growth faltering
                                          Limited saturated fat intake if cholesterol levels are raised

                                          Can affect metabolism of protein, fat or carbohydrate. Varies with the
                                          disorder – likely to be the restricted intake of one or more nutrients
                                          (e.g. specific amino acids)

                                          Varies according to symptoms of intestinal inflammation, nausea,
                                          poor appetite, malabsorption and malnutrition
                                          Some centres use periods of a specified formula feed in place of all
                                          food to induce remission of symptoms followed by a diet excluding
                                          any foods that induce symptoms in that particular child

                                          Nutritional support to address poor appetite and malnutrition. High-
                                          energy diet with modified fluid, protein, phosphate, sodium,
                                          potassium, calcium intakes may be required depending on the
                                          severity and type of disease and mode of renal replacement

                                          Nutritional support to address malnutrition and poor appetite. High-
                                          energy diet using specialized feeds, modified fat to address fat
                                          malabsorption, addition of branched chain amino acids and
                                          fat-soluble vitamins depending on the severity and type of disease
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