Page 5 - FCI Paying The Price ebook
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FAMILY  CARERS  –  VICTIMS  OF                                                    “How can I

                    3
        ABUSE                                                                          keep doing this
                                                                                      day after day? I’m
                                                                                     so tired I feel like I’ll
        Although  there  is  a  growing  body  of  research  on  the               drive off the road... I’m
        health outcomes of caring, little is known about the abuse               afraid he will seriously hurt
        experienced  by  carers,  both  physical  and  emotional,                me. I need help for when he
        at the hands of the person for whom they care. In this                   is aggressive—some sort of
        survey, almost half (44%) of carers reported that they
        regularly  experienced  either  physical  aggression  or                  self-protection training.”
        verbal/emotional abuse as part of their caring role. This                    (female, full-time
        figure shines a light on a hidden aspect of caregiving that                  carer for child)
        is  seldom  discussed.  While  the  risk  of  deterioration  in
        carers’ health and wellbeing as a consequence of caring
        is evident in an emerging body of research, there is clear
        evidence of the significant, long-term negative impact on
        the health of those who experience abuse. Consideration
        must be given to the consequences on a person’s health                 “We’ve been waiting 18
        when caring and abuse are combined.
                                                                                 weeks for an urgent
                                                                              psychology assessment for
        •  35%  of  carers  regularly  dealt  with                           my son who is often verbally
                                                                            and physically abusive to me,
            verbal and emotional abuse.                                       his dad and young siblings.
                                                                             This is after we waited over
        •  32%  of  carers  regularly  dealt  with                              four years for an ADHD
            physical aggression and violence.                                         diagnosis.”

                                                                                     (female, full-time
                                                                                      carer for child)
        Caring for a person whose behaviour is challenging can
        put  family  carers  under  great  pressure.  Unsurprisingly,
        carers  regularly  dealing  with  abusive  behaviour  were
        more likely to report poor health outcomes than those
        who  didn’t.  57%  of  those  experiencing  physical  and                   “I need
        verbal  abuse  were  diagnosed  with  anxiety  and/or                  training on how
        depression—significantly higher than the 48% of carers in            to protect myself
        the overall survey sample diagnosed with mental illness.         from getting hurt during
        72% of carers dealing with physically abusive behaviour       my child’s violent behaviour
        reported a physical ill health diagnosis—higher than the        and how to prevent the
        67% in the overall sample being treated for poor physical      person you are caring for
        health.  Abusive  behaviour  exhibited  by  care  recipients   hurting themselves during a
        was also associated with higher levels of carer stress and         violent outburst.”
        burden than that experienced by carers not dealing with         (female, full-time
        such behaviours. Despite this, 70% of carers at risk of         carer for child)
        abuse were not able to take a break because their loved
        one did not have access to suitable respite, creating a
        dangerous and unsustainable situation for family carers.
        57% of those experiencing physical                                                  “I would
                                                                                             love to
        and verbal abuse were diagnosed                                                   learn about
        with anxiety and/or depression.                                             managing challenging
                                                                                      behaviours as my
                                                                                   daughter can be quite
        Despite  the  risks  of  abuse,  80%  of  those  dealing  with           aggressive and violent and
        physical and/or verbal abuse had received no training                    she is only six. My mother
        for  their  role.  Yet  training  for  managing  challenging             who has dementia can be
        and aggressive behaviour was a common training need                        quite aggressive too.”
        identified by many carers.
                                                                                    (female, full-time carer
                                                                                       for elderly parents
                                                                                             and child)


        3  Although we use the terms ‘abuse’ and ‘abusive behaviour’, we are not suggesting that the person with care needs
        intended to abuse the carer.

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