Page 28 - SD Woman Glace Ziperovich Issue
P. 28

In a Health Crisis, You Come First.





                             But What About the Kids?




                                                 by Lorena Junco Margain




                                                                   “In sickness and in   often for more than a
                                                                health” are five short but   decade. Thirteen years
                                                                powerful words we all    ago, I began experienc-
                                                                know well. While few     ing symptoms that I later
                                                                people enter a lifelong   learned were due to a
                                                                relationship anticipating   tumor on my right adrenal
                                                                sickness or health strug-  gland. The symptoms
                                                                gles, as adults we under-  themselves, including diz-
                                                                stand the implications and   ziness and lethargy, were
                                                                make the conscious choice   a health crisis. But the
                                                                to accept them.          crisis amplified when the
                                                                   Fast forward to a time   surgeon treating me made
                                                                when we have children. A   a grave mistake: instead of
                                                                health crisis will inevitably   removing my right adrenal
                                                                affect them, too. Yet most   gland, he removed the left
                                                                often, it’s not something   adrenal gland. This error
                                                                they’ve even imagined    left me with a lifetime
                                                                until the crisis hits. This   of medical issues I must
                                                                leaves parents in an awk-  confront every single day.
                                                                ward position: we have to   Although ultimately, a sec-
                                                                share difficult news that’s   ond surgery removing part
                                                                hard for kids to process   of my remaining adrenal
                                                                and help them understand   gland saved my life, I now
                                                                what’s happening—all     live with only one-half of
                                                                the while continuing to   one adrenal gland. There
                                                                nurture them and remain   are days and often weeks
                                                                mindful of their needs and   when I am excessively fa-
                                                                mindset as kids.         tigued. I am often plagued
                                                                   This would be a lot in   with extreme fatigue, pain,
                                                                ordinary times, but when   depression, and confusion.
                                                                we’re in the midst of the   My children were
                                                                crisis ourselves, the chal-  young when this journey
                                                                lenges multiply. How do   began: my youngest—my
                                                                we care for our children,   son—was an infant, and
                                                                emotionally and physical-  my daughters were tod-
                                                                ly, when our top priority   dlers. My ongoing health
                                                                must be to care for our-  issues have been part of
                                                                selves? How can we talk   their lives for as long as
                                                                to them without scaring   they can remember. Here’s
                                                                them and keep them close   what I’ve learned over the
                                                                while maintaining a safe   years about living with
                                                                and necessary distance?   them, supporting them,
                                                                   These are questions I   and loving them against
                                                                have had to contemplate   this backdrop:

        28
   23   24   25   26   27   28   29   30   31   32   33