Page 12 - NKF-KL-issue-14-Autumn-2016-for-web
P. 12

Lift-off to our holiday of a lifetime in the USA

                                                                             By Amy Armstrong-Nunns



























                                                                Amy and Matthew pal up with Mickey Mouse in Florida









         F       or me, an acceptable quality of life on or off dialysis requires the ability to travel.  Being on holiday is as
                 important to a dialysis patient as it is to anyone else. We all need an escape. We all need the chance to
                 forget our every-day routines.  I would even argue that a dialysis patient needs this more because we
                 have more to think and worry about.
                 Last year I was able to experience my ‘Bucket List’ holiday that I never dreamed could be possible.  I
          travelled to the United States to visit the Grand Canyon, Las Vegas and Florida.  After a lot of planning and
          discussions with travel operators, my husband and I hopped on a plane with my NxStage dialysis machine and
          some supplies and headed to the happiest place on Earth: Disney World.   I felt like I was seven years old again
          and was treated like a Disney princess.  After a day spent gallivanting around Disney, the thought of sitting down
          for a few hours to dialyse was actually a welcome break!
          And then on to the Grand Canyon where we took a helicopter ride and were able to see one of the greatest
          wonders of the world from above, complete with a bottle of champagne.
          The highlight of the trip was when we stopped in Las Vegas and renewed our wedding vows by none other than
          Elvis!  What a contrast to the traditional wedding we had back in England!  I did my dialysis in the Bellagio Hotel
          overlooking the fountains and eating room service and was truly the happiest I have been in many, many years.
          Travel can be difficult to coordinate at times and there is a lot of additional ‘holiday stuff’ to arrange on top of
          everything else. I was able to have my dialysis supplies delivered
          to my various hotels along the way, but I still had to bring my
          equipment along which was challenging at times.  My husband
          jokes that it took longer to organize our honeymoon than it did the
          entire wedding, but I have had some wonderful experiences that
          make all the hassle worthwhile!

          I can’t come off dialysis as transplants are no longer a possibility
          for me. I’m stuck on the dialysis treadmill which often feels like a
          ball and chain. There is no escape.  However, the ability to travel
          whilst on dialysis is like a key that opens the lock and sets you
          free.  While you still need to dialyse, you can do it from the most
          amazing places and have some serious fun!

          I heartily recommend other people on dialysis to give it a go!  Renewing our wedding vows in Las Vegas with Elvis
           12  Autumn 2016   www.kidney.org.uk   HELPLINE  0845 601 02 09
   7   8   9   10   11   12   13   14   15   16   17