Page 5 - SCDAA Convention 2022

PRESIDENT’S GREETING

WELCOME TO SCDAA’S 50TH ANNUAL CONVENTION!
Thank you for joining us for this year’s event with our Board of Directors, community-based
member organizations, warriors, global partners, staff and supporters.

Find out how NFL football player Tevin Coleman and his wife
Fifty. Akilah team up to support their child with sickle cell and learn
The age where hope turns into faith. what’s in their sickle cell “playbook.”
Where conjecture becomes conviction.
Where wisdom and experience join forces to forge the future. Celebrate our nurses, community health workers and
community-based organizations during sessions that reflect
It was 50 years ago that the National Association for their frontline experience working with those living with SCD.
Sickle Cell Disease began leading the first country-wide,
coordinated approaches to addressing SCD. Dr. Charles F. Hear from corporate visionaries and legislative advocates on
Whitten and 15 community organizations bravely stepped up their efforts to treat and advocate for historic funding for sickle
and spoke out for better treatment, education and outcomes. cell research, services and programs that will directly benefit
Over time, this movement has grown and evolved. We the community.
changed our name to the Sickle Cell Disease Association of
America in 1994. We’ve expanded to include more than 50 And as always, we are warrior strong. Hear from warriors
member organizations. Our voice is stronger than ever. As we near and far as they share their experiences, challenges and
launch our 50th Annual National Convention, we reflect on successes.
and celebrate our history and the many courageous warriors
who have helped us get here. Have fun watching players battle it out in the grand final
round of Jeopardy and move and groove with Sickle Cell
For this year’s convention, we have joined forces with the Speaks’ Soul Sonic virtual dance party, courtesy of GBT! Join
NIH National Heart, Lung, and Blood Institute’s Sickle Cell us at the SCDAA Gala for awards, fun tunes spun by a DJ and
in Focus (SCiF) conference to bring you information and the the premiere of a hot new video by two gifted warriors.
latest developments from world-renowned experts in the SCD
community on topics that will inform, inspire and motivate you. The SCDAA board of directors, staff and member
organizations thank you for joining us for this milestone
Learn how to confront the challenging aspects of providing anniversary convention—and for all your support throughout
care to individuals with sickle cell during “Practical Education the year. Together we are Joining Forces for Our Future… and
for HCPs: How Do I Manage…,” a new series featuring expert the SCD community is a force like no other!
advice on oxygen dependency, renal function in aging SCD
populations, priapism, pain plans, pill burden and more. Enjoy the convention,
Regina Hartfield
Reflect on the legacy of Dr. Kwaku Ohene-Frempong during President & CEO
a new plenary session named in his honor. Mrs. Janet Ohene- Sickle Cell Disease Association of America, Inc.
Frempong will join us as the keynote speaker.
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