Page 44 - 15-38 Jan 9 2019
P. 44

Our story began when one             name and diagnosis to the dark
                                                        cloud  that  was  attacking  our
                   day about 3 months after being
                                                        son.   It   was   P.A.N.D.A.S.
                   diagnosed with a routine Strep
                   infection, our son started           (Pediatric       Autoimmune
                   presenting  strange  motor  tic      Neurological         Disorder
                                                        Associated  with  Streptococcus
                   movements.  We  were  very
                                                        bacteria) that’s right... our son's
                   concerned  and  had  no  idea
                                                        body  was  attacking  itself
                   what  was  wrong.  We  brought
                   him to the pediatrician and his      because  of  a  SIMPLE  STREP
                                                        THROAT  INFECTION  that  was
                   flippant answer was..."ignore it;
                                                        hiding  in  his  cells!  In  other
                   it  will  probably  go  away  by
                                                        words,  intracellular  bacteria
                   itself."   Another     doctor
                                    Bulletin
                   diagnosed  him  with  Tourette       were wreaking havoc in his little
                   Syndrome.  However,  it  wasn’t      body,  causing  his  immune
                   "Tourette  Syndrome"  and  it        system to attack his own body.
                                                        The  doctor  prescribed  a  long
                   didn’t "go away by itself." Over
                   the  course  of  two  years  it      course  of  antibiotics  (90  days
                   waxed  and  waned,  but  each        plus)  which  initially  brought
                                                        some  improvement,  but  soon
                   time when it came back, it was
                                                        that  improvement  began  to
                   worse  than  before.  First  came
                   OCD  symptoms,  Restlessness,        fade  away.  He  then  added

                   frequent  eye  blinking,  and  eye   steroids which helped, but only
                                                        temporarily, and not without
                   rolling.   Then   the   throat
                                                        taking  a  huge  toll  on  his  body
                   clearing,  and  the  slight  cooing
                                                        and his white blood cell count.
                   noises or vocal tics. And finally
                   and  even  more  suddenly  he        Our son was on medication for
                   started  shaking  his  head          almost two  years and yet his
                                                        condition    continued     to
                   uncontrollably.   We     were
                                                        deteriorate. we were losing our
                   frightened and devastated. We
                   took our son to the neurologist,     son to PANDAS.
                   and for the first time he gave a



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