Page 4 - AnnualReport2019_v3

YEAR IN
REVIEW

PROGRESS

REPORT:

In the summer of 2018, we achieved a huge
legislative win with the passage of the most
comprehensive childhood cancer
legislation ever introduced in Congress:
The Childhood Cancer Survivorship,
Treatment, Access & Research (STAR) Act.

The STAR Act authorizes $30 million annually
from 2019-2023 for programs and research to
combat childhood cancer through the National
Institutes of Health (NIH) and the Centers for
Disease Control and Prevention (CDC).

2018 BY THE NUMBERS: Every email, tweet, phone call and meeting from the tireless
advocates in our community played a part in this monumental
victory for our kids. But passing this legislation was just the
first step. We successfully achieved funding for the STAR Act
for fiscal year 2019 and will continue to fight for ongoing
418 advocates receiving funding and for STAR's successful implementation.
specialty training We also secured funding for a GAO report to evaluate the

through webinars and barriers to obtaining medical care for survivors of childhood
toolkits. cancer and to provide recommendations for improving access,
with a focus on palliative and psychosocial care. This GAO
report was originally part of the STAR Act but deleted in the
final hours and Children's Cause worked tirelessly to ensure
1,886 letters sent to that it was not forgotten during the appropriations process.
Congress by our In other funding news, the National Institutes of Health

advocates. received a $2 billion increase, providing a much-needed boost

to cancer research activities. And we worked with our partners
in the child health community to secure another ten years of
funding for the bipartisan Children’s Health Insurance
426 Members of Program (CHIP), giving families peace of mind that their child’s

Congress cosponsored care will be covered for the foreseeable future.
the Childhood Cancer

STAR Act.