Page 56 - MAY_2017

REAL LIFE

A FIRST-PERSON

PERSPECTIVE ON

WHAT IT’S LIKE TO

HAVE CHILDREN

WITH SYNGAP1

Obstacles faced, the effects

of the condition and how it

as changed our lives

Written by Danielle Williams

Have you ever had a sick child? A moment, an hour, a
day when you felt completely helpless? We’ve had six
years of feeling helpless, watching our daughters have
hundreds of seizures every day and struggling to do
the most basic tasks. The chronic worry changes you,
we now see the world through pain-tinted glasses.

While the pain and guilt is all encompassing, having
special needs children has also given me new perspective.
I have redefined success, happiness and accomplishment,
reminding myself every day that success is not always
packaged as you expected.

56 may 2017 | mychild