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                                                                                         WORLD NEWS Thursday 29 June 2023
            Some Dutch people seeking euthanasia cite autism


            or intellectual disabilities



            By MARIA CHENG
            AP Medical Writer
            LONDON  (AP)  —  Several
            people with autism and in-
            tellectual  disabilities  have
            been legally euthanized in
            the  Netherlands  in  recent
            years  because  they  said
            they  could  not  lead  nor-
            mal lives, researchers have
            found.
            The  cases  included  five
            people  younger  than  30
            who cited autism as either
            the only reason or a major
            contributing  factor  for  eu-
            thanasia, setting an uneasy
            precedent  that  some  ex-
            perts say stretches the limits
            of  what  the  law  originally
            intended.
            In  2002,  the  Netherlands
            became the first country to
            allow doctors to kill patients
            at their request if they met
            strict  requirements,  includ-
            ing having an incurable ill-  Protesters pray outside Dutch government buildings in The Hague, Netherlands, on Monday, April
            ness causing “unbearable”    9, 2001, as the Upper House of Parliament began debating registration that will legalize euthanasia
            physical  or  mental  suffer-  under strict guidelines. Slogan on table reads, “Human considers, God decides.”
            ing.                                                                                               Associated Press
            Between  2012  and  2021,
            nearly 60,000 people were  reasons  for  seeking  eutha-  it’s also impossible to know  sity’s Autism Research Cen-
            killed at their own request,  nasia.                      the true number of people  tre, said it was “abhorrent”
            according  to  the  Dutch  Thirty included being lonely  with  autism  or  intellectual  that  people  with  autism
            government’s  euthanasia  as  one  the  causes  of  their  disabilities  killed  at  their  were  being  euthanized
            review committee. To show  unbearable pain. Eight said  own request.                   without  being  offered  fur-
            how the rules are being ap-  the only causes of their suf-  Among  the  eight  patients  ther support.
            plied  and  interpreted,  the  fering  were  factors  linked  cited  by  researchers  were  He  noted  that  many  au-
            committee  has  released  to their intellectual disability  an  autistic  man  in  his  20s.  tistic  people  struggle  with
            documents related to more  or autism  social isolation, a  His record said “the patient  depression,  which  could
            than  900  of  those  people,  lack of coping strategies or  had  felt  unhappy  since  compromise their ability to
            most  of  whom  were  older  an  inability  to  adjust  their  childhood,”  was  regularly  make  a  lawful  request  to
            and had conditions includ-   thinking.                    bullied and “longed for so-  die. He also said an autistic
            ing   cancer,   Parkinson’s  “There’s  no  doubt  in  my  cial  contacts  but  was  un-  person asking to die might
            and ALS.                     mind  these  people  were  able  to  connect  with  oth-  not grasp the complexity of
            Irene  Tuffrey-Wijne,  a  pal-  suffering,”   Tuffrey-Wijne  ers.”                     the situation.
            liative  care  specialist  at  said.  “But  is  society  really    The  man,  who  was  not  Dr.  Bram  Sizoo,  a  Dutch
            Britain’s  Kingston  Univer-  OK  with  sending  this  mes-  named,  chose  euthanasia  psychiatrist,  was  disturbed
            sity,  and  her  colleagues  sage, that there’s no other  after deciding that “having  that young people with au-
            reviewed  the  documents  way  to  help  them  and  it’s  to live on this way for years  tism viewed euthanasia as
            to  see  how  Dutch  doctors  just better to be dead?”    was an abomination.”         a viable solution.
            were  dealing  with  eutha-  Other  countries,  including  The  records  also  included  “Some of them are almost
            nasia requests from people  Belgium, Canada and Co-       an  autistic  woman  in  her  excited at the prospect of
            with autism or with lifelong  lombia,  have  legal  eutha-  30s  who  also  had  border-  death,”  Sizoo  said.  “They
            mental  impairments.  They  nasia, but the Netherlands  line  personality  disorder.  think this will be the end of
            published  their  findings  in  is the only one that shares  She was offered a spot in a  their problems and the end
            the  journal  BJPsych  Open  detailed information about  supported living center, but  of their family’s problems.”
            in May.                      potentially   controversial  her doctors said she could  A  representative  of  the
            Among  the  900  people  deaths,  providing  the  best  not  maintain  relationships  Royal  Dutch  Medical  As-
            with  publicly  posted  case  window    into   emerging  and deemed contact with  sociation  said  it  was  up  to
            files, 39 of them were autis-  trends in assisted dying. Still,  others “too difficult.”  doctors to decide if some-
            tic and/or intellectually dis-  its  records  are  limited  to  In one-third of cases, Dutch  one  meets  the  criteria  for
            abled.  A  handful  were  el-  what  doctors  disclose.  So  doctors  concluded  autism  euthanasia.
            derly, but 18 of them were  there  could  be  other  fac-  and  intellectual  disabilities  The group said many cases
            younger than 50.             tors  that  weren’t  released  were untreatable and that  involving  patients  with  au-
            Many of the patients cited  or  cases  where  the  pa-    there  was  “no  prospect  tism were “highly complex”
            different  combinations  of  tient’s autism or intellectual  of  improvement,”  the  re-  and  that  “age  itself  is  not
            mental  problems,  physi-    disabilities weren’t noted.  searchers wrote.             a decisive factor to deter-
            cal  ailments,  diseases  or  Because the committee re-   Simon Baron-Cohen, direc-    mine whether a person suf-
            aging-related difficulties as  leases  only  select  records,  tor  of  Cambridge  Univer-  fers unbearably.”q
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