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IN THIS ISSUE

Autumn 2016 issue
European Union Referendum -
What happens next to renal and
NKF
Whichever side you were on in
the lead up to the European Union
(EU) referendum – the result is
clear. Britain is to leave the EU.
How this might affect kidney
patients is not yet understood. Will
our patients be affected at all? Will money allocated to the Page 14 Page 4
NHS be increased, or reduced?
Patients will know that NKF provides the secretariat to
the All Party Parliamentary Kidney Group (APPKG). This
group may indeed be affected by the subsequent political
change. The group needs to retain a political balance and Page 4 With her beloved assistance dog Pal at her
that balance depends on the resulting political fallout. It side, dialysis and diabetes become man-
is also true that Ministers cannot serve on the APPKG. So ageable for Claire Pearson. If you are reading
changes within government are being watched closely.
Page 6 Part three in our series on altruistic dona- this issue of Kidney
One thing is certain. Your NKF will be keeping a very close tion. A successful kidney transplant, using Life, do not already
eye on this situation and will be fully prepared to nip in a kidney donated by an altruistic donor, receive your own free
the bud, or challenge any changes that are deemed to be transforms life for Karen Kanee. of charge Kidney Life
retrograde to kidney patients. NKF is fully committed to magazine but would
protect you - at whatever stage of the renal journey you Page 10 Exploring home haemodialysis with Amy like to do so, please
may be. Armstrong-Nunns and Dr Natalie Borman
from the Wessex Kidney Centre. get in touch with us -
A message from Tim Statham OBE, CEO NKF address details below –
Page 13 Dela Idowu receives prestigious award for
Have you moved? Please her work raising awareness of the need for and we will arrange for
organ donation amongst the BAME it to be delivered to you
remember to let us know here community. at your home address.
at NKF HQ if you have
Page 23 Live Long and Prosper. Paul Conelly opens Together we CAN.
moved recently so that we up the debate on how to survive long term
may update our records dialysis.
here and ensure your issue NKF would like to thank the following for their
of Kidney Life is going to the continued sponsorship of Kidney Life:
correct address.
Abbvie Baxter Novartis Sandoz
Amgen Chiesi NXStage Sanofi
Message from the Editor Astellas Fresenius Quanta
B Braun Avitum Kimal
Welcome to the Autumn issue of Kidney
Life. Once again we in the Kidney Life office
have been overwhelmed by the excellent life NKF Officers
experiences submitted for our consideration.
Chairman David Marshall SAKA
Without your experiences there would be no
Vice Chairman Michael Walker Leicestershire KPA
Kidney Life. So, thank you if you have contacted us with your
Treasurer William Beale Bristol Area KPA
suggestion, and if you have not and have an interesting story to tell
Secretary Denny Abbott Gloucestershire KPA
us that you think may well help the 28,000 readers of Kidney Life,
Chief Executive Tim Statham OBE
we would love to hear from you. Please contact us via the Head
President Ken Tupling
Office email or address below. In this issue we have three dialysis-
Patrons Lawrence Keogh and Nina Wadia
focused articles. One by Paul Conelly on page 23 in which he asks
NKF Officers and Executive members do usually belong to a KPA, but
YOU to add to his list of hints and tips on how to cope with long
offer their services to NKF as individuals. As such NKF recognizes that
term dialysis. Let the debate commence! views expressed by its Officers and Executive members are expressed
as individuals and do not necessarily represent the views of their KPA.
Deborah Duval – Editor
KIDNEY PATIENTS UK KIDNEY PATIENTS UK KIDNEY PATIENTS UK
Registered Office:
The NKF Helpline provides all manner of information and over If you want to raise funds for the NKF, plan
The Point, Coach Road, Shireoaks,
200 unique NKF information leaflets to patients, friends and an event, make a donation to the NKF
Worksop, Nottinghamshire S81 8BW
family of patients, and medical professionals. All calls from UK or discuss leaving a legacy to the NKF
T: 01909 544999 F: 01909 481723
landlines are free to the caller. Open from 9am to 5pm Monday please contact Pete Revell (NKF Head of
e: nkf@kidney.org.uk to Friday. If you would like to contact Pauline or Andrea who Fundraising).
Charity No. 1106735 will handle your call in compete confidence and with sensitivity, T: 01263 722287
Co. No. 5272349 reg. in Eng. & Wales please call or email them on:
Give as You Earn contribution No. CAF.GY511 e: events@kidneynkf.com
T: 0845 601 02 09 e: help2@kidney.org.uk
Front cover image: Falhat Hussein, year 9 student at Capital City Academy. Winner of the Brent Council
www.kidney.org.uk ‘organ donation community poster’ competition. See page 13 Dela Odowu award.
HELPLINE 0845 601 02 09 If you require a larger print or audio version of the issue,
HELPLINE 0845 601 02 09 www.kidney.org.uk Autumn 2016 3
these are available by contacting the NKF Helpline on
0845 601 02 09 (calls from UK landlines are free of charge)