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Early Intervention Provides Hope to Children Diagnosed with Epilepsy

                               First Choice Neurology Physician Helps Family Use FDA-approved Cannabis Safely


          Adam and Monica Adache knew some-                                                                             Other studies are also available for
        thing wasn’t right when their daughter,                                                                       qualified patients through the Epilepsy
        Maya, had a seizure at only six months                                                                        Program at Nicklaus Children’s Hospital.
        old. When those seizures continued to                                                                         Fenfluramine, for example, is another
        happen, they became extremely con-                                                                            medication currently in clinical trials and
        cerned. During one episode, she also had                                                                      is expected to receive a decision regard-
        a high fever and her pediatrician recom-                                                                      ing FDA approval within the next year,
        mended she be admitted to the ER. After                                                                       added Dr. Miller.
        five nights in the hospital and a convul-                                                                       According to the Epilepsy Foundation
        sion that lasted more than an hour,                                                                           (www.epilepsy.com), 3.4 million people
        physicians put her on medications to                                                                          in the United States are living with
        control the seizures. The episodes con-                                                                       epilepsy, 470,000 of whom are children.
        tinued, however, so they followed the                                                                         One in 26 Americans will develop epilep-
        recommendation of a friend and request-                                                                       sy at some point in their lifetime.
        ed an evaluation at Nicklaus Children’s                                                                       Epilepsy Florida provides support to the
        Hospital. Maya ultimately became a                                                                            more than 400,000 individuals in the
        patient of Ian Miller, M.D., a physician                                                                      state living with epilepsy and seizures
        with First Choice Neurology and                                                                               (www.epilepsyfl.com).
        Director of the Comprehensive Epilepsy                                                                          First Choice Neurology is the largest
        and Neurophysiology Program at the               Dr. ian Miller                      Maya Adache              private pediatric and adult neurology
        Miami hospital.                                                                                               group in the United States, with more
          After trying more than seven different   and silver medal recipient at Special   chronic infections.”       than 80 neurologists and 120 support
        medications, some of which made Maya’s   Olympics regional competitions.   Epidiolex®, a plant-based formulation   health care staff members. The practice
        symptoms worse, according to Adam,     Dr. Miller says that his patients with   of CBD and the first ever FDA-approved   operates out of 41 facilities in six Florida
        they were accepted into a clinical trial for   Dravet syndrome as well as Lennox-  medication to treat seizures in Dravet   counties and offers coverage in 35 major
        cannabidiol (CBD), a medication derived   Gastuat syndrome (LGS), another seri-  syndrome and LGS, has been scientifical-  hospitals. Expertise in pediatric neurolo-
        from cannabis recently approved by the   ous form of epilepsy, are experiencing   ly demonstrated to reduce seizures and is   gy includes epilepsy, traumatic brain
        FDA as Epidiolex®.                   positive results thanks to new FDA-  giving patients new hope, according to   injury, neurocritical care, cerebral palsy,
          “This medication has been incredible,”   approved cannabis medications as well as   Dr. Miller.             movement and neuromuscular disorders,
        said Adam, who said that Maya also   early detection by their primary care   “I’m seeing relief for some of my   headaches, autism and neurodevelop-
        underwent brain resection surgery that   physicians or other specialists.    patients with this medication,” he said.   mental disorders, neurogenetics, atten-
        provided relief for about a year. She was   “When I see patients at younger ages, I   “However, patients and their families   tion and learning problems, sleep disor-
        diagnosed at age 9 with a rare, cata-  find that positive results are more likely,”   need to make sure any cannabis medica-  ders, and advanced neurodiagnostic
        strophic, lifelong form of epilepsy called   he said. “Identifying symptoms early in a   tion they try is FDA approved.”   services.
        Dravet syndrome, which begins in the   child’s life can be critical. Examples of   Epidiolex® was created by GW
        first year of life with frequent and/or pro-  symptoms that could signal an issue,   Pharmaceuticals (www.gwpharm.com), a   For more information, visit
        longed seizures. Now almost 12, Maya   include frequent or prolonged seizures,   biopharmaceutical company focused on          www.FCNeurology.net.
        has a passion for ice skating and is a gold   development and behavioral delays, or   developing cannabinoid therapeutics.






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        South Florida Hospital News                                                              southfloridahospitalnews.com                                                                July 2019                            9
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