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CREATING A CARE

NOTEBOOK

Creating a care notebook is one tool that can help you organize important information about your child. Even with the
electronic medical records that are utilized among hospitals, parents and caregivers still receive countless printouts and
paperwork at each appointment. Having a portable medical summary for your child to take to appointments and keep all
documents in one place will serve a vital purpose in the ongoing advocacy for your child's overall care. It will also prove
helpful while working with your insurance provider and ensuring the coverage to expect with the different therapies and
services being provided.

Creating a care notebook can help you:

• Keep track of medications, therapy and treatment plans, tests and evaluation results
• Organize contact information for health providers, social workers, therapists and organizations

• Keep track of communication from meeting sessions about your child (IFSP and IEP records).

• Help you to prepare for appointments and address questions and concerns
• Keep track of all statements and communications between your insurance company

How to get started:

• Build a notebook using a 3-ring binder, expandable folder or box and add dividers that are important to you. Examples
can include: Portable Medical Summary, Quick Contact, Discharge Reports, Records, Logs, Therapy Calendar.

• Gather all existing information such as discharge reports, clinic visit summaries, immunization records, school plan, test
results and scheduled care plans.
• Clear page protectors make it easy to remove and update pages as needed. Some families have found it works best to
have different notebooks for school and health records - find what works best for your family.

• Frequently used forms can be found and printed from our website at under the Family Support section.

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