Page 15 - pediatric_stroke_warriors_family_toolkit

A word to parents, caregivers and family
THE PATH TO THERAPY
One step at a time.
In the beginning, it can feel like
simply breathing becomes hard
work.
As you begin going through the
motions of doctor appointments,
evaluations, therapy and all the
encompassing medical moments
in your child's early life, you will
reach a place of courage and
determination that you may have
never known as a parent.
As parents, we believe we are
our child's teacher, but often it is
our child that teaches us the
greatest life lessons.
EARLY INTERVENTION THERAPY – BIRTH TO THREE
Early intervention programs provide specialized health, educational
and therapeutic services during the first three years of life for children
who have developmental delays or disabilities.
Children who are considered “at risk” of developing a delay may also
receive services. The most common intervention services for children
after stroke are physical therapy, speech therapy, and occupational
therapy. These services are mandated by a federal law called the
Individuals with Disabilities Education Act (IDEA). The law requires
that all states provide early intervention services for any child who
qualifies, with the goal of enhancing the development of infants and
6
toddlers.
Intervention is vital during this very early time after stroke because a
child learns and develops at the fastest rate during these first few
years of life. It’s important not to miss out on this crucial part of your
child’s development.
The goal is always to help your child achieve the highest function and
interaction at home and within the community. Early intervention can
also be a huge support and guidance to your family. There is a lot to
know about early intervention, so we have covered the basics to help
as you get started. Your child’s neurologist can put you in touch with
early intervention programs in your community, or many states have
online information and further explanations for parents detailing the
early intervention services in each state.
WHAT TO EXPECT FROM AN EVALUATION
Your child needs to be evaluated to determine if he or she is eligible
for early intervention services. This evaluation is of no cost to your
family because it is funded by the state and federal government.
You will be asked to sign a consent form prior to the evaluation and
share information about your child’s development, health and their
medical history. You will be asked to provide information about your
family’s resources, priorities and concerns. This detailed information
is necessary to help the early intervention team develop a plan that
meets the needs specific to your child and family.