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NATIONAL HIGHLIGHTS

MEDIC AL AND RESEAR C H ADVISORY C OMMITTEE
(MARAC)

SCDAA’s Medical and Research Advisory Committee (MARAC) activities included meetings to address patient, caregiver
and provider concerns. Numerous advisories were produced to respond to COVID-19 updates and other health concerns:
• MARAC Advisory Statement Update: COVID-19 and Sickle Cell Disease
• MARAC Advisory Statement: Monkeypox
• MARAC Advisory Statement: Immunizations

Preparing CHWs to Serve the Community

COMMUNITY
HEALTH SCDAA’s National Community Health Worker (CHW) Training Program continues
WORKER
TRAINING to function as an online, self-paced course. The online modules also offer a course specifically
designed to help supervisors and managers learn how to provide high-quality supervision
to CHWs, identify potential issues that CHWs might face, support CHWs’ professional
development and more.
EVALUATION REPORT
June 19: Shine the Light on SCD Awareness Globally
Sickle Cell Disease Association of America, Inc.
7240 Parkway Drive, Suite 180 • Hanover, Maryland 21076
www.sicklecelldisease.org
In collaboration with SCDAA, advocacy groups, community-based organizations, hospitals, governments and other key
shareholders celebrated World Sickle Cell Awareness Day on June 19, as designated by the United Nations. Participants
wore red and attended events online and in their communities to promote awareness and advocacy.

July 30: 9th Annual
Virtual Walk with the Stars

SCDAA’s annual event was virtual once again
this year, but it still made a big impact! Thank
you to all the teams and individuals who joined
us to #MoveForSickleCell and raise funds this
summer. We are one step closer to a universal
cure because of your support!

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