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                                                                                           TECHNOLOGY Saturday 16 May 2020
            Faxes and email: Old technology slows COVID-19 response




            By FRANK BAJAK                                                                                                      feed  it  into  the  $25  million
            AP Technology Writer                                                                                                Palantir  system.  On  April
            On  April  1,  a  researcher                                                                                        10, Health and Human Ser-
            at  the  Centers  for  Disease                                                                                      vices  Secretary  Alex  Azar
            Control  and  Prevention                                                                                            added  more  reporting  re-
            emailed  Nevada  public                                                                                             quirements  for  hospitals.
            health counterparts for lab                                                                                         Those mandates sparked a
            reports  on  two  travelers                                                                                         backlash  among  stressed
            who had tested positive for                                                                                         hospitals  already  report-
            the coronavirus. She asked                                                                                          ing data to state and local
            Nevada  to  send  those  re-                                                                                        health  departments.  Pro-
            cords via a secure network                                                                                          ducing additional cumber-
            or  a  "password  protected                                                                                         some spreadsheets for the
            encrypted  file"  to  protect                                                                                       federal government "is just
            the travelers' privacy.                                                                                             not sustainable," said Janet
            The Nevada response: Can                                                                                            Hamilton,  executive  direc-
            we just fax them over?                                                                                              tor of the Council of State
            You'd hardly know the U.S.                                                                                          and  Territorial  Epidemiolo-
            invented  the  internet  by                                                                                         gists. q
            the  way  its  public  health
            workers  are  collecting  vi-
            tal  pandemic  data.  While
            health-care  industry  re-
            cord-keeping is now mostly   In this Feb. 13, 2020, file photo, Jay Butler, deputy director for infectious diseases at the Centers for
            electronic,  cash-strapped   Disease Control and Prevention (CDC), speaks to the media in regards to the novel coronavirus,
                                         while standing in front of a map marked with areas having reported cases, inside the Emergency
            state and local health de-   Operations Center in Atlanta.
            partments  still  rely  heavily                                                                    Associated Press
            on faxes, email and spread-
            sheets  to  gather  infectious  None of this is news to the  cal  data  on  coronavirus  factors  such  as  diabetes,
            disease  data  and  share  it  CDC  or  other  health  ex-  cases,  largely  because  it  heart  and  respiratory  dis-
            with federal authorities.    perts. "We are woefully be-  would have to be manually  ease — for 6% of reported
            This  data  dysfunction  is  hind," the CDC's No. 2 offi-  extracted  from  electronic  cases.
            hamstringing  the  nation's  cial, Anne Schuchat, wrote  records,  then  sent  by  fax  Missing  from  daily  indica-
            coronavirus  response  by,  in  a  September  report  on  or  email,  said  Johns  Hop-  tors that CDC makes public
            among  other  things,  slow-  public health data technol-  kins epidemiologist Jennifer  is data such as nationwide
            ing  the  tracing  of  people  ogy.  She  likened  the  state  Nuzzo.                  hospitalizations  over  the
            potentially   exposed    to  of  U.S.  public  health  tech-  It's  not  unusual  for  public  previous 24 hours and num-
            the  virus.  In  response,  the  nology  to  "puttering  along  health  workers  to  have  to  bers  of  tests  ordered  and
            Trump administration set up  the  data  superhighway  in  track patients down on so-   completed  —  information
            a parallel reporting system  our Model T Ford."           cial media, use the phone  vital to guiding the federal
            run  by  the  Silicon  Valley  HOLES IN THE DATA          book or scavenge through  response,  said  Dr.  Ashish
            data-wrangling firm Palan-   This  information  technol-  other  public-health  data-  Jha, director of the Harvard
            tir.  Duplicating  many  data  ogy  gap  might  seem  puz-  bases  that  may  have  that  Global Health Institute.
            requests, it has placed new  zling given that most hospi-  information,  said  Rachelle  "The CDC during this entire
            burdens on front-line work-  tals and other health care  Boulton,  the  Utah  health  pandemic  has  been  two
            ers  at  hospitals,  labs  and  providers  have  long  since  department official respon-  steps  behind  the  disease,"
            other  health  care  centers  ditched paper files for elec-  sible  for  epidemiological  Jha said.
            who  already  report  case  tronic health records. Inside  reporting.  Even  when  hos-  REINVENTING THE WHEEL
            and testing data to public  the  industry,  they're  eas-  pitals  and  labs  report  that  Instead of accelerating ex-
            health agencies.             ily  shared,  often  automati-  information  electronically,  isting  efforts  to  modernize
            There's  little  evidence  so  cally.                     it's often incomplete.       U.S.  disease  reporting,  the
            far that the Palantir system  But  data  collection  for  in-  Deficiencies in CDC collec-  White House asked Palantir,
            has  measurably  improved  fectious-disease  reports  is  tion  have  been  especially  whose founder Peter Thiel is
            federal or state response to  another  story,  particularly  glaring.                  a major backer of President
            COVID-19.                    in  comparison  to  other  in-  In  75%  of  COVID-19  cases  Donald  Trump,  to  hastily
            Emails   exchanged     be-   dustrialized  nations.  Coun-  compiled in April, data on  build out a data collection
            tween  the  CDC  and  Ne-    tries  like  Germany,  Britain  the  race  and  ethnicity  of  platform  called  HHS  Pro-
            vada officials in March and  and  South  Korea  —  and  victims  was  missing.  A  re-  tect. It has not gone well.
            early April, obtained by The  U.S. states such as New York  port  on  children  affected  On  March  29,  Vice  Presi-
            Associated  Press  in  a  pub-  and  Colorado —  are able  by the virus only had symp-  dent  Mike  Pence,  who
            lic records request, illustrate  to  populate  online  dash-  tom  data  for  9%of  labora-  chairs the task force, sent a
            the scope of the problem.  boards  far  richer  in  real-  tory-confirmed  cases  for  letter  asking 4,700 hospitals
            It sometimes takes multiple  time  data  and  analysis.  In  which  age  was  known.  A  to  collect  daily  numbers
            days  to  track  down  such  Germany, a map populat-      study on virus-stricken  U.S.  on virus test results, patient
            basic  information  as  pa-  ed  with  public  data  gath-  health  care  workers  could  loads and hospital bed and
            tient addresses and phone  ered  by  an  emergency-       not tally the number affect-  intensive  care-unit  capac-
            numbers.  One  disease  de-  care  doctors'  association  ed because the applicable  ity.  That  information,  the
            tective  consults  Google  to  even  shows    hospital  bed  boxes  were  only  checked  letter said, should be com-
            fill a gap. Data vital to case  availability.             on  16%  of  received  case  piled   into   spreadsheets
            investigations  such  as  pa-  In  the  U.S.,  many  hospitals  forms. In another study, the  and emailed to the Federal
            tient  travel  and  medical  and doctors are often fail-  CDC only had data on pre-    Emergency  Management
            histories is missing.        ing to report detailed clini-  existing  conditions  —  risk  Agency,   which   would
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