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American Indian Cancer Survivors’ Perspectives on












                                                                                                                                                                                          the Cultural Adaptability of the COMFORT













                                                                                                                                                                                         Communication Curriculum: A Pilot Study



















                                                                                                                                                     Mary J. Isaacson, PhD, RN, CHPN                                                                                                            ®1;         Victoria LS Britson, PhD, APRN, CNP, FNP-BC ; Tinka Duran, MPH ; Richard Mousseau, MS                                                                                                                                                                                                                                                                                              3
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                                                                                                                                                                                                                                    1  SDSU, College of Nursing;  Avera ECare;  Great Plains Tribal Leaders Health Board









                                                                 INTRODUCTION                                                                                                                                                                                                                                                                     DESIGN, METHOD, AND ANALYSIS













                              • American Indians residing in the Northern Plains                                                                                                                                                                                                                                                                                                                                                                                                        DESIGN/METHOD




                                     experience greater cancer burden and higher                                                                                                                                                                                                                                                                                                                                                                                                        • Community-based participatory




                                     cancer mortality rates than Whites.                                                                                                                                                                                                                                                                                                                                                                                                                        approach




                              • Early implementation of palliative care with                                                                                                                                                                                                                                                                                                                                                                                                            • Talking Circle with 7 American




                                     cancer therapy, improves quality of life and life                                                                                                                                                                                                                                                                                                                                                                                                          Indian cancer survivors in Western




                                     expectancy. However, access to palliative care                                                                                                                                                                                                                                                                                                                                                                                                             South Dakota




                                     for American Indians is severely limited.                                                                                                                                                                                                                                                                                                                                                                                                          • Audio-recorded, transcribed




                              • Palliative care is supportive care designed to                                                                                                                                                                                                                                                                                                                                                                                                                  verbatim




                                     help those with serious illness to “live well.”




                              • Little is known regarding culturally-appropriate                                                                                                                                                                                                                                                                                                                                                                                                        ANALYSIS




                                     approaches toward introducing and delivering                                                                                                                                                                                                                                                                                                                                                                                                       • Content analysis by 2 researchers




                                     culturally-relevant palliative care to this                                                                                                                                                                                                                                                                                                                                                                                                        • Member checking conducted with




                                     population.                                                                                                                                                                                                                                                                                                                                                                                                                                                Tribal members.




                              Purpose: To understand American Indian cancer




                              survivors’ perspectives regarding the cultural




                              acceptability and adaptability of a palliative care




                              communication curriculum.


















                                                                            OBJECTIVES
















                                1. Describe the 7 underlying principles of the




                                        COMFORT Communication Curriculum.                                                                                                                                                                                                                                                                                                                      RESULTS AND IMPLICATIONS




                                2. Identify American Indian cancer survivors’




                                        views on current palliative and end-of-life




                                        communication with healthcare                                                                                                                                                                                   RESULTS                                                                                                                                                                                                            IMPLICATIONS




                                        professionals.                                                                                                                                                                                                  • The COMFORT curriculum has great potential for                                                                                                                                                                   • Healthcare professionals working with American Indians




                                3. Discuss the opportunities and challenges of                                                                                                                                                                                   cultural adaptation.                                                                                                                                                                                               need to be aware of differing cultural nuances specific to




                                        culturally-adapting a palliative and end-of-                                                                                                                                                                    • The participants indicated that the following areas                                                                                                                                                                       palliative and end-of-life care communication.




                                        life care communication curriculum with this                                                                                                                                                                             extremely important regarding specific




                                        American Indian population.                                                                                                                                                                                              communication approaches:                                                                                                                                                                                 • Greater awareness and incorporation of American Indian


                                                                                                                                                                                                                                                                                     • First meeting                                                                                                                                                                                cultural norms specific to palliative and end-of-life care




                                                                                                                                                                                                                                                                                     • Delivery of difficult news,                                                                                                                                                                  communication has the potential to ease the burden of




                                                                                                                                                                                                                                                                                     • Prayer                                                                                                                                                                                       cancer and improve outcomes.




                                                                                                                                                                                                                                                                                     • Time
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