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MEET SICKLE CELL                                                                                     My   goal  is  to one  day  own   from house chores.
                                                                                                                                                                                  It’s also  quite worrying when
                                                                                                                                                  a state  of  the  art hospital  in
                                                                                                                                                                                  you are hospitalised and you
                                                                                                                                                  Cameroon where warriors will
                                             WARRIOR NORA                                                                                         have free medical care in ex-   need to worry about how your
                                                                                                                                                                                  kids are  doing.  My children
                                                                                                                                                  treme cases.
                                                                                                                                                                                  are constantly troubled  and
                                                                                                                                                  At the  moment  the  funding
                                             MOLONGWE                                                                                             come from the events she  or-   will ask questions like “mum-
                                                                                                                                                  ganises  and  donations  from
                                                                                                                                                                                  my  what’s  wrong,  why    are
                                                                                                                                                  people of good will.
                                                                                                                                                                                  you  crying,  is your  leg  hurt-
                                                                                                                                                  It is not easy living with sickle   ing?”.  Sometimes it breaks
                                             Despite the many lives sickle cell disease take on a yearly basis,                                   cell and being a single  mum    my heart seeing that.But this
                                             it is not one that we hear about a lot. This disease is a killer that                                raising four children, is quite   is the way being a Sickle cell
                                             should be taken serious. This is what Nora, the sickle cell war-                                     demanding.  There  are  days    patient influences my life and
                                             rior thought when she started her  Sickle cell foundation “Emeli’s                                   my body  just shuts down        that of my children.
                                             Smile Sickle Cell Foundation back in 2018.




                                                                          What is Sickle cell actually?                                           When did you find out where you were a sickle cell patient?


                                                                          Sickle Cell Anaemia is a genetic blood disorder                         “I  found out  I was  sickle  cell from  cell when I was just 11 months old. I
                                                                          that affects the red blood cells. Instead of the                        childhood,  because I  took  daily  had  swollen  hands and  feet and  was
                                                                          red blood cells being round in shape, sickle red                        medicines,  folic acid  and  I  started  crying a lot, so she had to rush me to
                                                                          blood cells have the shape of a Sickle. These                           asking  questions to  my mother. But  hospital.”
                                                                          sickle cells get trapped  in  blood  vessels and                        mum said she discovered I was sickle
                                                                          blood the smooth flow of blood. This gives rise
                                                                          to excruciating pain known as sickle cell crisis.

                                                                                                                                                                               Is there a difference in being a patient in Cameroon

                                                                                                                                                                               or in Europe?



                                                                                                                                                                               Nora was born and raised in Cameroon. Being a sickle cell patient living in
                                                                                                                                                                               Cameroon is very different compared to one living in Europe.

                                                                         Tell us about Nora                                                                                    Sickle cell in Cameroon is still characterised by stigma and poor health
                                                                         My name is Nora Molongwe, popularly known                                                             care. Some families can’t even afford food to eat. This situation is getting
                                                                         as Nora Brown a . I am a 37 year old mother of                                                        worse by the day since the conflict better the English & the French. So we
                                                                         4 ( ages 16, 12, 5 and 2) , Sickle cell warrior and                                                   try to help the best way we can with the resources we receive.
                                                                         advocate and founder of Emeli’s Smile Sickle
                                                                         Cell Foundation.  This  foundation  helps in                                                          In the UK healthcare is free. In other parts of Europe insurance policies
                                                                         creating awareness, education and subsidies                                                           cover the cost etc but in Cameroon the patient has to pay for everything,
                                                                         health care cost & offer FREE medications to                                                          including the blood.
                                                                         sickle cell warriors.
                                                                         I  started  this foundation  in  2018   as a form
                                                                         of giving back to the community and helping                                                           What is the best advice you can give another person
                                                                         the low income families affected by Sickle cell                                                       with Sickle Cell?
                                                                         after haven lost my two siblings from the dis-
                                                                         ease.                                                                                                 Eat well, drink plenty and get enough rest.
                              NORE BROWN

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