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3.3.12 Learning Disability Strategy
          and continues to work towards finding a solution.
          Proposed plan is to pilot transitioning one patient, and
          delivering joint paediatric and adult physiotherapy to
          support training and development for adult services   Aims:
        • Presented AHFT Transition work at Greater             • To improve the experience of children with a
          Manchester Health and well-being board and have         Learning Disability (LD) and/ or Autistic Spectrum
          been identified as key players and invited to return to   Condition (ASC).
          the group in March 2018
                                                                • Improve Trust’s ability to identify children with a
        • Become members to represent AHFT at the National        LD/ASC and respond to their needs through the
          transition network                                      provision of reasonable adjustments (Equality Act
                                                                  2010).
        • Invited to present AHFT at National AQuA event in
          March 2018                                            • Raise awareness of LD/ASC amongst staff
                                                                  through bespoke training.
        • Presented at AHFT Grand Round
                                                                • To build upon service user/carer and partnership
        • Working closely with community paediatricians to
                                                                  involvement in the LD/ASC strategy across the
          address service gaps for ADHD/ASD patients moving
                                                                  trust.
          to adult services, and prescribing issues with GP’s
        • After working in partnership with AQuA two years
          ago on developing a paediatric friendly ‘Ask 3       Approximately 1.5 million people in the UK have a
          Questions’ the draft versions have been received for   learning disability (LD), including approximately 286,000
          comments, we have given feedback and are awaiting    children. Research shows that men with a LD die 13
          confirmation to implement. We have requested Alder   years sooner than peers, and women die 20 years
          Hey’s logo to go onto these documents                sooner than peers.

                                                               In partnership with Edge Hill University and supported
                                                               by commissioners, Alder Hey has made significant
                                                               improvements to the LD pathway.

                                                               Reasons for Change

                                                               Children and Young people with LD can present to any
                                                               service or specialty in the hospital and community.
                                                               The Trust recognises the need to identify this group of
                                                               children as early as possible to ensure the provision of
                                                               reasonable adjustments (Equality Act 2010) to support
                                                               their timely and successful access to healthcare, and
                                                               promote the best experience possible.
          Front page of transition website at
           www.10stepstransition.org.uk
                                                               Following cessation of the Trust agreed CQUIN
                                                               (Commissioning for Quality and Innovation) which was
        Future Plans for 2018/19                               designed to improve aspects of the LD pathway and
                                                               access to care, the Trust has made significant progress
        • Further develop work on transition of patients with
                                                               in meeting the needs of this population.
          complex conditions as per CQUIN for 2018/19
        • Implement the transition folder for children with a   In January 2018 a full time acute liaison team was
          long term condition, to hold all their transition specific   formed to continue to drive the LD/ASC agenda
          information in and their personal transition plan    forward in the trust. This team will continue to build

        • Planning a third National Transition Conference, to be   on improvements and will contribute to the ongoing
          delivered in partnership with Lancashire, Manchester,   partnership work across Liverpool via the Acute Liaison
          NW Coast SCN, MHT, Claire House and Alder Hey,       Network that has continued post CQUIN hosted by
          as a North West approach to Transition to be held in   Liverpool CCG.
          June 2018
        • Development of a ‘capacity, decision making and
          best interest’ information leaflet in partnership with
          Edge Hill University

        • Continue to implement Transition specialty by
          specialty Trust wide.


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