Page 198 - The Life of A Teenage Girl (Stories About Finding Your Way)

CHAPTER 1

T
hey say Dahlia means flower—something soft, delicate,

always needing care. Maybe that’s what I’ve always been.
Born with Fabry disease, my body has never had the strength

to run, climb, or chase the wind like other kids. The doctors said my
cells couldn’t break down fat properly—that it would stay with me

forever. So I’ve been homeschooled, tucked away in quiet rooms while

the world moved on outside.
But this week, everything changes. My disease decided to give me

a chance, so I’m going to school. Since I’m about to be a teen, I have
to start school.

But today, I’ll be going to the hospital for an appointment. As I

was going downstairs, my mom stopped me and asked, “Wait, did you
take your extra medication for the disease?”

I answered with a sigh, “Yes, ma’am.”
“Okay, and did you also take your Fabrazyme dose for later?”

“Yes. Now, can we go?”
My mom has always been worried about me. Not that I hate it—

it’s just… I’m responsible for my health now, and it’s not a big deal

anymore. Not even Dad or my little sister acts like that.